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Supporting Phoenix Children's IBD Clinic
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RESOURCES
Current Events
In lieu of our planned educational event we will be updating this section with resources to assist with the current situation
COVID-19 and Immunocompromised Patients: A Guide for Parents
CLICK HERE What to do for families with an immunocompromised patient
Information About the Novel COVID-19 for IBD Patients and Families
CLICK HERE Reliable resources of information about conronavirus
Arizona Department of Education
CLICK HERE For the Guidance to Schools & families regarding COVID-19 including school meals for individuals under the age of 18
Crohn's and Colitis Foundation (COVID-19) : What IBD Patients Should Know
CLICK HERE Keeping you up to date
Top Reads to Get You Started
Phoenix Children's Hospital Parent Working Group (PWG) collectively felt these were the most important things to read
504 Plan Template
Use this template to draft your students 504 to ensure your child receives necessary accommodations in school
A Guide for Parents
You cannot believe what the doctor has told you and you want to develop a better understanding
A Guide for Teachers and Other School Personnel
Many teachers are not familiar with IBD, this resource will help educate them on what your student may experience
A Letter to My Younger Self
School Resources
Useful tips for the classroom and beyond
IBD Accommodations-Patient Advisory Council
CLICK HERE to view Accommodations exist to make aspects of your life accessible and less stressful.
Finding the Funds for College
CLICK HERE to find resources that may help identify additional financial support
AbbVie Immunology Scholarship
The AbbVie Immunology Scholarship was created to honor exceptional students living with inflammatory diseases, including Crohn’s disease or ulcerative colitis, as they pursue goals of higher education. CLICK HERE FOR MORE DETAILS
Medical Information
Helpful resources about your medical care
Improve Care Now
ImproveCareNow has created a collaborative community where clinicians, researchers, parents and patients are empowered to learn and continuously improve to bring about more reliable, proactive IBD care for healthier children and youth.
Psychosocial Issues with IBD
Ostomy Tool Kit
A guide to gutsy living CLICK HERE
Transitioning from Pediatric to Adult Care
Things to consider when it is time to leave your pediatric GI doctor
Register to attend the IBD PWG educational event "Transitioning from Pediatric to Adult Care" April 15th
NiMBAL
Healthy Mind Healthy You Study
CLICK HERE A new study about how mindfulness can help people cope with stress
Community, Support & More
Local & National
Camp Oasis
The Crohn’s & Colitis Foundation offers Camp Oasis in most major regions nationwide throughout the summer. Any child with medically stable Crohn’s disease and ulcerative colitis is invited to apply
Calm.com
Find your calm
Crohn's & Colitis Foundation
The Crohn's & Colitis Foundation is the leader in research, education & patient support for IBD CLICK HERE TO VISIT
Family Support Group
Traveling with IBD
A toolkit to a successful trip
The views expressed on this page are those of the IBD Parent Working Group and do not necessarily reflect the official policy or position of Phoenix Children’s Hospital or Phoenix Children’s Hospital Foundation. Although the IBD Parent Working Group site(s) may include links to other internet resources, the IBD Parent Working Group is not responsible for the accuracy or content of information contained in these sites.